EDS Awareness – Tumblr, do your bit!
Right guys, I’ve heard Tumblr can do miraculous things. Can we please do one today?
Kitty Richardson, age 12, UK, has written a song called ‘The Cure’ for EDS Awareness Month. Kitty’s got EDS and like so many of us, she has had quite a struggle with it. Her story was recently told in the Daily Mail (http://www.dailymail.co.uk/health/article-2295159/Girl-12-joints-dislocate-TEN-times-day—shes-playing-piano.html). Despite EDS, she has continued in her love of music and, as you can see from this song, she’s really quite a star.
I am calling on you to support her and her song and in doing so supporting EDS Awareness Month. She commented somewhere that she wanted the video views to get to 1000 and comments to get to 25. Can we get it to above and beyond that? I think so. Can we get it beyond? We can try. With enough publicity, Kitty might be able to get this onto iTunes or a CD which would mean a HUGE increase in EDS Awareness.
PLEASE please do your bit today and make her day – if she’s in the UK, she’ll be at school for the next few hours and wouldn’t it be amazing to surprise her by getting her to her target by the time she gets back for the weekend?
Please view, share, comment on her song:
http://www.youtube.com/watch?v=FXLlMtdzKxM&feature=youtube_gdata_player
Reblog anywhere and everywhere - the more countries we can get involved the better.
You don’t need to have EDS to help. If you want to support a girl who has persevered through a whole lot of rubbish then please spend a few seconds on her channel. I don’t know this girl but I do know that even at her young age she has inspired me.
Thank you!
xxx :-)
The Cure – Kitty Richardson
I struggle every second of every hour
I feel like I have no power
But I have to stay strong
Even though you can’t see anything wrong
Doesn’t mean I made it up all along
Through all the pain
No one knew
I had EDS
EDS should be recognised
Even if it’s rare
Somewhere there is a cure
We just need to find it
Then the pain will stop
No more having to hide it
You and I look the same on the outside
But inside I’m falling to pieces
We need more people to be aware of EDS
Ehlers-Danlos has six types
One of which will take your life
Unless we find a cure
You can help the smallest bit
Trust me – you won’t regret it
Saving someone’s life is the best deal of all
EDS should be recognised
Even if it’s rare
Somewhere there is a cure
We just need to find it
Then the pain will stop
No more having to hide it
You and I look the same on the outside
But inside I’m falling to pieces
We need more people to be aware of EDS
You want to help
The only thing stopping you is yourself
Ride a bike, sing a song
With your help, it won’t take a long
You jump – you take it for granted
I wish I could do the same
I would jump with you
But EDS is to blame
Somewhere there is a cure (somewhere)
We just need to find it (Help us find it)
Then the pain will stop (oohooh)
No more having to hide it
You and I look the same on the outside
But inside I’m falling to pieces
We need more people to be aware of EDS (of EDS)
I struggle every second of every hour
I feel like I have no power
But I will stay strong.